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**scoliboymom** · 09-05-2007, 10:21 PM

I actually learned how to measure the cobb angle and always got a copy of the x-rays, more because I couldn't wait to find out what was happening with my sons spine. My results were within 5 degrees of what the doctors found. One time the radiologist made a mistake and found the curve hadn't changed at all when in fact it had increased significantly. I e-mailed the doctor and asked if he could remeasure and he did and he agreed there had been a mistake.
I wouldn't hestitate to ask the surgeon to remeasure the x-rays. The results you are getting are quite different and do make the difference between possibly needing surgery or not.
Is it possible to get another doctors opinion?
My son had his surgery this year at Sick Kids in Toronto and for the most part it was a positive experience. Their ortho team is nothing but excellent. Maybe you could get a second opinion from them?
By the way has your daughter finished growing and have her curves been steadily increasing?

Ramona

**rtremb** · 09-06-2007, 12:03 AM

Ramona:

Thanks for your post.

These new Cobb angles from radiology are their second read on Esme's x-rays (the surgeon asked for a second read from them since the first read seemed so off). The surgeon has also done two readings as well!! We are a bit confused to say the least but we will keep trying to get to the bottom of it. We were very devastated when the doctor said Esme needed surgery so we are hopeful the radiology department has the right readings (wishful thinking!!). I will ask for a copy of Esme's x-rays from now on.....

We are going to see Dr. Rivard in Montreal as soon as we can get an appointment - he has agreed to see our daughter Esme. Hopefully they will give us a less confusing read on her angles. We are hoping for a Spinecor brace.

Our daughter's scoliosis is s-shaped and has been progressing steadily over the past 2+ years. She is not finished growing. The surgeon estimated she is a 0-1 Risser although he couldn't be sure since they didn't have the appropriate x-ray to show that clearly. She is premenarchial.

Our son has an s-shaped scoliosis too and it looked like he was headed for surgery however we were fortunate - his curves seem to have stopped progressing and have even reduced a bit. He did not wear a brace. He is 17 this weekend so we are hoping his curves won't progress now.

Glad to hear all went well with your son's surgery. It must be so hard to go through - I think it must really help if you have doctors you feel good about.

**rtremb** · 09-29-2007, 12:10 AM

At this point we are having to think the radiologist made an error when he read Esme's x-rays since three doctors have now measured her curves at or just over 50 degrees. The radiologist who read the x-rays is away until later in the month so we aren't able to get an explanation from him yet.

**rtremb** · 03-17-2008, 03:05 PM

Does anyone know an internet link that describes how to measure thoracolumbar curves?

**Susie*Bee** · 03-17-2008, 03:46 PM

This site might help you out... scroll down a little and it shows how to figure Cobb angles.

http://www.pediatriceducation.org/2006/12/11

The main problem with different people determining the angle is that they might choose different beginning and ending vertebrae, which would throw the whole thing off. Sometimes looking at the x-ray, it doesn't look like a definite "this is where to start" spot... and even just drawing the lines can lead to some error, so that is why they say give or take 5�.

You can probably pull up other links just by googling "how to measure cobb angles"--

**WNCmom** · 03-18-2008, 09:01 AM

Originally posted by Susie*Bee

This site might help you out... scroll down a little and it shows how to figure Cobb angles.

http://www.pediatriceducation.org/2006/12/11

The main problem with different people determining the angle is that they might choose different beginning and ending vertebrae, which would throw the whole thing off. Sometimes looking at the x-ray, it doesn't look like a definite "this is where to start" spot... and even just drawing the lines can lead to some error, so that is why they say give or take 5�.

You can probably pull up other links just by googling "how to measure cobb angles"--

Ruth--

This is what happened to us. Our chiro actually got a bigger angle than the hospital did, and he told us he was measuring a different vertebra that had the greater angle. Since then we've been going with his measurements so we can compare apples to apples.

**txmarinemom** · 03-18-2008, 02:04 PM

And, actually, if the x-rays are read by different doctors, the margin of error can be �10�.

Regards,
Pam

**Singer** · 03-18-2008, 03:06 PM

I had a radiologist and 2 different scoliosis specialists read my x-rays and their measurements were 55, 60, and 70 degrees, respectively. I noticed that my surgeon measured my main curve on the outside of the curvature, whereas the other specialists measured it on the inside.

**txmarinemom** · 03-18-2008, 03:52 PM

Originally posted by Singer

I had a radiologist and 2 different scoliosis specialists read my x-rays and their measurements were 55, 60, and 70 degrees, respectively. I noticed that my surgeon measured my main curve on the outside of the curvature, whereas the other specialists measured it on the inside.

Singer, by "on the outside", I assume you mean from the top (or bottom) of the vertebra? (mine was T5-L1 ... it was measured above T5, and below L1).

That's actually the only way I've ever had anyone measure mine (in almost 30 years), and everything I've ever read on Cobb measurement describes it that way. Measuring below the top involved vertebra or above the bottom involved vertebra (preaching to the choir here, I know!) could make a HUGE difference.

It could also be VERY dangerous - and an invitation for decompensation. Eek!

Even the surgical plan with one doctor can vary. Hanson and I had agreed on T5-L1, but the morning of surgery (after more examination of the films) he said he'd really feel better if we took T4 as well because he felt it *could* possibly be involved in the structural curve.

T4 for me was kind of a no-brainer since I'd already agreed to T5 (and it's not really a "bending area", per se).

I honestly feel he did the right thing going higher: The cervical pain I had in the compensatory curve (whiplashed area also ... 3mm protrusions at C5-C6/C6-C7) is GONE. Maybe it has nothing to do with fusing higher, maybe so.

Now, if he'd told me he wanted L2, I've had probably put things on hold.

I know plenty of people get on with life with a lumbar fusion (and remember my curve wasn't progressing, nor did the MRI show degeneration), but I think I'd probably have decided to tough it out a few more years (yes, for softball).

At some point I'd have let him do it if he thought it was necessary, I just wasn't ready YET for that. Luckily, I didn't have to make that choice.

Regards,
Pam

**rtremb** · 03-18-2008, 03:55 PM

Thank you all for your comments. We have had this happen in the past too where the x-ray readings differ radically when done by a surgeon, a chiro or the radiology department.

While I can see that Esme's curves have progressed I wanted to check the measurements myself but am not quite sure how to figure out which vertebrae is which so I can compare the measurement to previous ones (i.e., use the same vertebrae to measure).

Also since Esme's has two curves (thoracolumbar) not sure where the apex would be.

Ruth

**txmarinemom** · 03-18-2008, 04:01 PM

Each structural curve should have it's own apex, Ruth.

Regards,
Pam

**rtremb** · 03-19-2008, 01:37 AM

I have attached Esme's March 13, 2008 x-ray. Scary looking!! If anyone would like to measure it and tell me what you think her curve measurements are I'd really appreciate it.
Ruth

**txmarinemom** · 03-19-2008, 02:36 AM

Originally posted by rtremb

I have attached Esme's March 13, 2008 x-ray. Scary looking!! If anyone would like to measure it and tell me what you think her curve measurements are I'd really appreciate it.
Ruth

Ruth, I realize you're looking for answers, but unless we have a surgeon on this board, I REALLY think it's a bad plan to have a bunch of laypeople (and I don't care *how* many times they've played around with their *own* x-rays) measure Esme's.

You've seen written where even with professionals the margin of error can range from �5� to �10�. You need to wait and get YOUR surgeon's answer.

What you're asking is definitely setting yourself up for more confusion - and potential freak out ... just because someone knows how to do it *IN THEORY* doesn't mean they can do it accurately.

Regards,
Pam

**Aussiemum** · 03-19-2008, 05:35 AM

In all honesty Ruth - what does it matter??

If she had one doctor telling you 30 and another one 42 THEN I could understand the urgency in deciding the correct measurement. As you know the consensus is once over 40 degrees bracing is no longer contemplated.

So while I understand you wanting to know the EXACT measurement (as I would) I don't think it really comes into play in making a decision for the next step. Her x-ray looks quite severe to me.

It seems everyone has their own style of measuring the cobb angle (I experienced something similar to yourself between doctors) but so long as you get the same person each time to measure the progression then the rate should be accurate. I just stuck with my Surgeon and his expertise, I never relied on what the Radiologist wrote. I just figured my Scoli surgeon was looking and measuring these types of things all the time and he was the most qualified to do the job.

It's all very frustrating, isn't it! Hope you can get it all sorted out one way or another.

Cheers
Del

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